Care Recipient Functional Ability: Impact on Caregiver Assessments

Without a doubt, the functional ability of the care recipient is a critical piece of the caregiving role.  Not surprisingly, poorer care recipient functional ability (cognitive and physical) leads to greater demands on the caregiver and subsequent negative caregiver outcomes (Chappell & Reid, 2002; Vitaliano et al., 1991).

Behavior and Mood Disturbance Scale

  • Measures two dimensions: degree of behaviour and mood disturbance demonstrated by the care recipient.
  • 34 items (5-point scale)
  • Greene, J. G., Smith, R., Geardiner, M., & Timbury, C. C. (1982). Measuring behavioral disturbance of elderly demented patients and its effects on relatives: A factor analytic study. Age and Ageing, 11, 121-126.

Caregiving Hassles and Uplifts Scale

  • Measures caregiver appraisal of events occurring in the past week of caregiving as a hassle, an uplift, or both, or neither.  Includes 4 subscales: care recipients limitations in ADL, care recipients cognitive status, care recipients behaviour, and practical aspects of caregiving.
  • 110 items (4-point scale)
  • Kinney, J. M., & Stephens, M. A. P. (1989). Caregiver hassles scale: Assessing the daily hassles of caring for a family member with dementia. The Gerontologist, 29, 328-332.
  • Kinney, J. M., & Stephens, M. A. P. (1989). Hassles and uplifts of giving care to a family member with dementia. Psychology and Aging, 4, 402-408.

Negative Perception of Care Situation

  • Measures the extent to which the caregiver defines the caregiving situation in a negative manner.
  • 7 items (4-point scale)
  • Noelker, L. S., & Townsend, A. L. (1987). Perceived caregiving effectiveness: The impact of parental impairment, community resources, and caregiver characteristics. In T. Brubker (Ed.), Aging, Health and Family, Long Term Care. Newbury Park, CA: Sage Publications.

Perceived Burden Measure

  • Measures the number of care recipient needs (e.g., transportation, bathing, administering medications).
  • 15 items (2-point scale)
  • Macera, C. A., Eaker, E. D., Jannarone, R. J., Davis, D. R., & Stoskopf, C. H. (1993). A measure of perceived burden among caregivers. Evaluation & the Health Professions, 16, 204-211.

Physical Labor Scale

  • Measures whether the care recipient needs physical assistance with eating, bathing, dressing, toileting, medications, shopping, and cleaning.
  • 11 items
  • Morycz, R. K. (1985). Caregiving strain and the desire to institutionalize family members with Alzheimer’s disease: Possible predictors and model development. Research on Aging, 7, 329-361.

Revised Memory and Behavior Problems Checklist

  • Measures two domains: the frequency of problematic behaviours in persons with dementia, and the caregiver reactions to these behaviours.
  • 24 items (5-point scale)
  • http://www.alz.org/national/documents/C_ASSESS-RevisedMemoryandBehCheck.pdf
  • Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S., & Vitaliano, P. P. (1991). The screen for caregiver burden. The Gerontologist, 31, 76-83.

Vigilance/Disruptiveness Scale

  • Measures whether care recipient needs reminding or watching for various tasks or symptoms.
  • 13 items
  • Morycz, R. K. (1985). Caregiving strain and the desire to institutionalize family members with Alzheimer’s disease: Possible predictors and model development. Research on Aging, 7, 329-361.

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