It can be difficult to recognize that caregivers can require an equal amount of attention and support as the care recipient. Even when service providers are are aware of caregivers’ needs, limited time, heavy workloads, relatively few resources and daily disruptions may make it challenging to provide optimal care to both care recipients and their caregivers. Some caregivers have reported feeling marginalized by the very policies, programs and services that are meant to help reduce the negative impacts of caregiving. It is important for service providers to understand that caregivers may be providing care within the context of complex interpersonal dynamics, struggling with a range of transitions and crises, be experiencing challenging emotions, and facing multiple legal and ethical issues.
There are a wide variety of measures designed to assess various components of caregivers’ experiences that can be helpful to service providers. To assist service providers in selecting appropriate tools an annotated bibliography of articles about issues and practise related to assessment, as well as a review of caregiver measures is provided.
All measures included have been published. Scales have undergone peer-review and can thus be deemed acceptable (i.e., valid and reliable) when used with populations for which they were developed. It should be noted that some scales fall in the public domain, others are available but must be accessed via an academic article, while other still must have permission from the author prior to being used (and may require a fee). Those in the public domain have either been linked to a .pdf document or .html document. Some measures included have not been developed specifically for the caregiving population. Those developed for the general population are noted in the individual measure descriptions. For more about methods, click here.
- Assessment-related articles
- Reviews of caregiver measures
- Caregiver assessment tools